“Riff-raff, street rat, I don’t
buy that. If only they’d look closer. Would they see a poor boy? No siree
they’d find there’s so much more to me“ (Rice, 1992) .
Have you ever felt this way? What
if we change the lyrics a little? Overweight, lazy, I don’t buy that. If only
they’d look closer. Would they see a Diabetic? No siree they’d find out there’s
so much more to me. You can insert any disease or affliction you have into
those lyrics, are we truly what our issues make us? Sitting at your house
sulking over whatever ails you will never get you far in life. Does our life
have a chance of being more, yes it does!
We get up every day to face a world
that seems to never understand our issues. We take that first step off the bed
and have that instant sensation of pain shoot from the bottom of your foot to
the top of your head, the cringe that follows, and the possible muscle spasm
all from stepping on something… no all from just stepping. We do not have to
step on something to have pain it is just there day in day out, it wakes us in
our sleep and sometimes (a lot for me) prevents us from sleeping altogether.
I got into a debate this evening
with someone over pain levels as they stated I seem to be in a lot more pain
lately. This is sadly true, it has been discovered that the Gabapentin that was
dulling the pain of the Neuropathy was making my Diabetes worse at the same
time. On the medication I averaged a 360 mg/dl (20 mmol/l) off the medication I
am averaging a 135 mg/dl (7.5 mmol/l). The problem is I now bottom out into a hypoglycemic
state daily. So on the meds I have a high BG and low pain, off the meds low BG
but HIGH pain so which life is better.
Back in January I stated I was
going to take a break due to everything and I needed to really find myself
again. I have come to a point where I know the Neuropathy and the Diabetes are
out to end me, but I will not back down and let it win. I must fight because I
have too much in this world worth being around for to just give up. Where do
you see yourself in your daily battle with this disease?
http://www.butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/
ReplyDeleteThis sums it up pretty nicely, John.
Thank you very much for sharing this link with me. I had never heard it explained like that before but I will admit I was crying by the end as I FULLY understand it. Mine may not be Lupus, but it is still the same. Both are diseases no one sees and they cannot understand what we go through. I really appreciated this.
DeleteGreat post! My husband is disabled from the neuropathy. Pain all day every day. Gabapentin didn't help him. He takes Cymbalta, Lyrica, Topamax, pain meds, muscle relaxers and some out of the box topical spray the doctor tried that worked. Its horrible. No one understands his pain since they cant see the disability. Its a terrible disease. Take care and post more :)
ReplyDeleteSandy, I saw one of your posts from earlier this year for the first time last night. to be honest till last night I had stayed away from the blog trying to figure out everything. I have to go in front of a Judicator soon in regards to disability for the Neuropathy and many other issues. I cry daily with pain right now as there is nothing to dull it without being so drugged I cannot even stay awake and to me that is less of a life than what I already deal with. I pray your husband finds the strength each day to face it and not get discouraged as I understand how much it sucks lol. Go and read the article Cathain has posted above, I know it hit the spot dead center and your husband may find it to be very good also.
Delete